General Disability Information
This page provides information and resources to help you more fully understand the characteristics of specific disabilities.Skip to search results
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Description: Founded in 1973, the National Down Syndrome Congress is the country’s oldest national organization for people with Down syndrome, their families, and the professionals who work with them. We provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome, and work to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.
Description: After choosing your state, all the listings in that state will appear. Once you click on a category, you will be asked to enter a zip code in the state you picked. After you enter your zip code and hit the enter key, a map of all the listings of that category in the state will appear.
Description: The Grandparent Autism Network informs grandparents about autism and the medical, educational, legal and social issues that affect their families, enabling them to share how they may improve the quality of life for their children and grandchildren.
Description: An easy-to-read booklet on Bipolar Disorder in children and teens that explains what it is, when it starts and how to get help. (NIMH- National Institute of Mental Health)
Description: The Waisman Center is dedicated to the advancement of knowledge about human development, developmental disabilities, and neurodegenerative diseases. In addition to its research efforts, the Center provides an array of services to people with developmental disabilities, offers numerous early intervention, educational, and outreach programs to young children and their families, and trains scientists and clinicians who will serve our nation in the future.
Description: This contains a listing of the reading products available from Don Johnston.
Description: The following materials are available for download: Milestone checklists (single ages), Milestone products for a range of ages, Flyers, Condition-specific fact sheets, Other resources and Materials in other languages (Arabic, Korean, Portuguese).
Description: The LD Navigator is a clinical tool and resource kit that provides practical information about learning disabilities (LD) specifically for pediatric healthcare professionals. The LD Navigator provides the pediatric office with options for enhancing clinical intake and assessment, providing referral and relevant information to parents, and empowering both children/adolescents with LD and their parents to access effective, research-proven intervention and related services.
Description: The Brain Injury Association of New York State is now broadcasting webinars! Join us for FREE monthly webinars on an array of topics focusing on the needs of children and veterans following brain injury. Past Webinars include: "From the Desk of the School Nurse: How to Implement a Concussion Management Protocol" and "The Meaningful Link in Supporting Individuals and Families: BIANYS Family, Advocacy, Counseling, and Training Services (FACTS) Program" and "Return to Learn: Supporting Students...
Description: These webinars cover a variety of topics, including toileting, nutrition/feeding, transition to adult life, health, healing, and siblings, are presented in conjunction with the Johnson Center for Child Health & Development.
Description: This report focuses on the extent to which public schools across America are meeting the educational needs of children with traumatic brain injury (TBI).
Description: This manual will assist school personnel in understanding how a brain injury can best be recognized and served. It includes five chapters on: 1) basic normal neuroanatomy, 2) tasks mastered during normal development and how a brain injury can disrupt development at any point, 3) 16 domains (or skills) most commonly disrupted following a brain injury, 4) social/emotional competency and 5) the federal definition of TBI and its implications on formalized services (504 Plans),...
Description: Children with a history of a previous concussion, particularly recent or multiple concussions, are at increased risk for prolonged symptoms after concussion. These findings have direct implications on the management of patients with concussion who are at high risk for repeat injuries.
Description: This collaborative webinar provided an overview of the burden of TBI among young children ages, 0-4, the work of the HRSA Traumatic Brain Injury Program, and efforts to mitigate the impact of TBI on this population.
Description: The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns. (Sibshops, SibTeen, Sib20 and Sib Net)
Description: Pennsylvania's BrainSTEPS (Strategies Teaching Educators, Parents, and Students) Brain Injury School Re-Entry Consulting Program is in its 8th year of assisting school districts in creating educational plans for students following an acquired brain injury. BrainSTEPS Concussion Return to Learn Educational Resources includes PA's Return to Learn Concussion Management Teams Why Districts Should Form Return to Learn Concussion Management Teams (CMTs) Concussion Webinar Concussion Return to...
Description: This booklet describes the kinds of Social Security and Supplemental Security Income (SSI) and health benefits for a child with a disability and explains the evaluation of disability claims for children. (Spanish version)
Description: This booklet is for the parents, caregivers or representatives of children younger than age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments. It is also for adults who became disabled in childhood (prior to age 22) and who might be entitled to Social Security Disability Insurance (SSDI) benefits. (We call this SSDI benefit a “child’s” benefit because it is paid on a parent’s Social Security earnings record.)
Description: Everyone is at risk for a traumatic brain injury (TBI), especially children and older adults. CDC’s research and programs work to prevent TBI and help people better recognize, respond, and recover if a TBI occurs. This site includes information on: Adults and TBI as well as Children and Teens and TBI. There is free online training available for Medical Providers, for Coaches (Youth Sports) and for High School Coaches. (CDC- Centers for Disease Control and Prevention)
Description: The Children’s National SCORE Concussion program is staffed by neuropsychologists and neuropsychology post-doctoral fellows who can assess and treat children, teens, and college student-athletes, ages 4-22, who have sustained a concussion. An important part of treatment is educating the student and parents about concussions, the risks of re-injury, and ways to ensure recovery.
Description: The Sport Concussion Library offers a wealth of information on the topic of sport concussion. It has information for all audiences, including researchers, athletes, parents, coaches and first responders (therapists/trainer), educational institutions and physicians.
Description: Welcome to the MomsTeam concussion safety center! We first began providing comprehensive concussion safety information to youth sports parents, coaches and athletic trainers in 2000.
Description: The NFHS has teamed up with the Centers for Disease Control and Prevention (CDC) to educate coaches, officials, parents and students on the importance of proper concussion recognition and management in high school sports. This course highlights the impact of sports-related concussion on athletes, teaches how to recognize a suspected concussion, and provides protocols to manage a suspected concussion with steps to help players return to play safely after a concussion. Each state's...
Description: The Mid-Atlantic ADA Center provides information, guidance and training on the Americans with Disabilities Act (ADA), tailored to meet the needs of businesses, government entities, organizations, and individuals in the Mid-Atlantic Region (DC, DE, MD, PA, VA, and WV).
Description: This is the Official Website of the U.S. Social Security Administration. This contains a variety of information and resouces concerning disability benefits. Social Security pays disability benefits to you and certain members of your family if you have worked long enough and have a medical condition that has prevented you from working or is expected to prevent you from working for at least 12 months or end in death.
Description: The Smithsonian's National Museum of American History has unveiled an online exhibit of disability in America. The exhibit "Everybody: An Artifact History of Disability in America" features sections on disability and history, people, places, technology and more. The exhibit presents history as viewed from the perspective of people with disabilities.
Description: Intellectual disability, also known as mental retardation, is a term used when there are limits to a person’s ability to learn at an expected level and function in daily life. Levels of intellectual disability vary greatly in children –from a very slight problem to a very severe problem.
Description: If you are concerned about a child’s behavior, it is important to discuss these concerns with the child’s healthcare provider. This checklist describes the types of symptoms that a healthcare provider will ask about in the process of deciding whether a child has ADHD. You can use this checklist to help you start the conversation. Deciding if a child has ADHD is a process with several steps. There is no single test to diagnose ADHD, and many other problems, like anxiety, depression,...
Description: This Adolescent Health Highlight describes barriers to treating adolescent mental health disorders; discusses the connection between insurance status and access to mental health treatment; and explains funding for adolescent mental health services.
Description: This Adolescent Health Highlight presents the warning signs of mental disorders; describes the types of mental disorders and their prevalence and trends; discusses the consequences and risk of mental disorders; presents treatment options and barriers to accessing mental health care; and provides mental health resources. presents
Description: This Adolescent Health Highlight presents key research findings on characteristics that are associated with resilience; describes program strategies that promote resilience; discusses links between resilience and avoidance of risk-taking behaviors; and provides helpful resources on the topic of resilience.
Description: This document, Supporting the Identification and Achievement of the Twice-Exceptional Student, developed by the Virginia Department of Education (VDOE), provides parents, educators, and students with answers to some questions concerning the identification process and instruction of students with dual exceptionalities.
Description: ASD is a complex developmental disorder that affects how a person behaves, interacts with others, communicates, and learns. The NICHD supports and conducts research on what causes autism, how best to detect signs of autism, how best to intervene or treat autism, and other topics.
Description: The Organization for Autism Research (OAR) was created in December 2001–the product of the shared vision and unique life experiences of OAR’s seven founders. Led by these parents and grandparents of children and adults on the autism spectrum, OAR set out to use applied science to answer questions that parents, families, individuals with autism, teachers and caregivers confront daily. No other autism organization has this singular focus.
Description: This link includes the conference sessions and downloadable materials from the 8th Annual Special Education Conference (Fairfax County Public Schools). Topics include: transition (post-secondary, preschool), executive functioning, reading (middle and high school), medicaid waivers, online textbooks, ADHD, Apps, depression and suicide prevention, bullying, stress, inclusion, mathematics, dyslexia, mentoring, communication to enhance the IEP Process, Down Syndrome, VA Assessment options, child...
Description: Friends of Quinn is an online community that offers resources and support for young adults with learning differences, as well as for the people who love them. It was founded by Quinn Bradlee, filmmaker and author of A Different Life, a book about growing up with LDs, and the mission is to connect the LD world.
Description: CBIRT is a center under the Office of the Vice President for Research and Innovation at the University of Oregon. CBIRT conducts research and training to improve the lives of children and adults with traumatic brain injury (TBI). CBIRT’s research focuses on developing interventions to improve outcomes related to education, employability, and quality of life. Our training activities promote the use of best practices among educators and other professionals who serve individuals with TBI....
Description: English language learners with disabilities are a growing part of the K-12 school population in the U.S. The available knowledge on how to effectively educate these students, and measure their progress, is small but increasing. However, many educators and families have pressing questions. This Impact issue offers responses to some of those questions by people from around the country who are helping schools meet the needs of this growing student population.
Description: CDC has FREE brochures, posters, fact sheets, and more for parents, health care providers, and public health professionals. These include: Hearing Loss Fact Sheet, Decision Guide to Communication Choices, Making a Plan for Your Child as well as Questions You May Want to Ask Your Child's Genetics Team or Medical Professional or Early Interventionists or Ear, Nose and Throat (ENT) Doctor or Audiologist or Speech Language Pathologist (available in English and Spanish). There is also a Communication...
Description: This page includes resources about Autism in a number of languages (Arabic, Bangla, Bosnian, Cambodian, Chinese, French, Greek, Korean, Loatian, Portuguese, Russian, Serbian, Somali, Spanish, Vietmanese). Other languages are coming soon (Japanese, Persian, Romanian). Resources vary by language and more are being added.
Description: Researchers found that 53% of youth admitted to the juvenile justice system reported a history of sustaining at least one traumatic brain injury.
Description: The cognitive effects of concussion can last for several months in children; and sleep disturbance correlates with concussion symptoms, according to two studies presented at the annual meeting of the American Medical Society of Sports Medicine (AMSSM), held from April 17 to 21 in San Diego.
Description: Children with more severe concussion symptoms take longer to recover from their head injury than those with milder symptoms, a new study finds.
Description: Hispanic children with TBI report larger and long-term reductions in their quality of life, participation in activities, communication, and self-care abilities compared with non-Hispanic white (NHW) children. The reasons for these differences need to be better understood and interventions implemented to improve the outcomes of these children.
Description: The Arc of Virginia promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
Description: The Virginia Department for Aging and Rehabilitative Services (DARS) is conducting a statewide Brain Injury Needs & Resources Assessment with individuals who have obtained a brain injury and their family members / caregivers in Virginia, as well as organizations and individuals who provide services to this community. As part of this effort, the Survey Evaluation and Research Laboratory (SERL) at Virginia Commonwealth University is assisting DARS in collecting information from these three...
Description: The DVD, a key component of the “Autism in the Schoolhouse” initiative, is designed to provide general education teachers with strategies for supporting their middle and high school students with autism. There are 4 Segments: 1. Characteristics, 2. Integrating Supports in the Classroom, 3. Practices for Challenging Behavior and 4. Effective Use of Teacher Supports. (The segments are available for viewing through YouTube.)
Description: The Brain Injury Association of America publishes THE Challenge!, a quarterly magazine featuring news from Capitol Hill and across the country. Each issue focuses on a special topic of interest to our constituents.
Description: This list of Autism resources was compiled by the Virginia Autism Council for the State Special Education Advisory Committee (May 2013). The second page, What You Need to Know About Me: A Student with Autism, which was developed by the Virginia Department of Education Training and Technical Assistance Centers’ Autism Network (2012).
Description: This site is a resource for educators and parents of deaf and hard of hearing students with disabilities. It takes a team to build a community that connects, learns, and shares together to support these unique students.