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National / State Organizations

A multitude of National Organizations exist to provide information, support and research in a wide range of disabilities and medical conditions. Explore this page for an organization in your area of interest.
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Showing Results 151 - 200 of 327
Description: The National Center has a mission: “To educate and train parents and professionals, and to conduct research that will prevent the shaking and abuse of infants in the United States”. Shaken baby syndrome (SBS) is the leading cause of death in abusive head trauma (AHT) cases. An estimated 1,200 to 1,400 children are injured or killed by shaking every year in the United States. (National Organization)
Description: Decoding Dyslexia VA is a grassroots parents movement focused on linking families to resources, support and educational interventions for dyslexia. We aim to raise dyslexia awareness and empower families to support their children. We work with and inform policy-makers on best practices to identify, remediate, and support students with dyslexia in Virginia.
Description: The Parent Educational Advocacy Training Center builds positive futures for Virginia's children by working collaboratively with families, schools and communities in order to improve opportunities for excellence in education and success in school and community life. Our special focus is children with disabilities. We do this by providing: Services and support for families and professionals; Easy-to-understand, research-based information and training; and Opportunities for strategic partnerships...
Description: We are a non-profit organization dedicated to supporting foster, kinship, and adoptive families of children and youth with disabilities and other special needs. We serve families, educators and child welfare professionals in the Northern Virginia area.
Description: This information sheet is provided to help you recognize and understand sports concussion. Neurologists from the American Academy of Neurology (AAN) are doctors who identify and treat diseases of the brain and nervous system. The following evidence-based information* is provided by experts who carefully reviewed all available scientific studies on evaluating and managing sports concussion in athletes. Concussion is a serious health issue.
Description: Project SEARCH provides employability skills training and workplace internships for individuals with significant disabilities, particularly youth transitioning from high school to adult life. Project SEARCH originated at Cincinnati Children's and now has program sites throughout the United States and the United Kingdom.
Description: The Pyramid Plus Center works to improve the social and emotional competence and inclusion of young children through the Pyramid Plus Approach: embedded inclusion practices along the entire developmental continuum (Birth – 5 years) within the Pyramid Model framework. This approach builds on the work of the Center on the Social and Emotional Foundations for Early Learning (CSEFEL), the Technical Assistance Center on Social Emotional Interventions (TACSEI), and the SpecialQuest Approach and...
Description: While it is expected that parents and school personnel will work in partnership to ensure children with disabilities are provided appropriate services, there are times when the child’s parents and school officials cannot reach consensus on what constitutes a free appropriate public education (FAPE) for an individual child. When such disagreements occur, parents and school districts can turn to IDEA’s procedural safeguards and dispute resolution options.(parent, parents)
Description: The Center for Appropriate Dispute Resolution in Special Education (CADRE) works to increase the nation’s capacity to effectively resolve special education disputes, reducing the use of expensive adversarial processes. CADRE works with state and local education and early intervention systems, parent centers, families and educators to improve programs and results for children with disabilities. CADRE is funded by the Office of Special Education Programs at the US Department of Education to serve...
Description: Pepnet2 (pn2) recognizes the full range of postsecondary education and training options available for individuals who are deaf or hard of hearing, including those with co-occurring disabilities, and strives to enhance the capacity of those institutions to appropriately serve this diverse student population. Pn2 is a national collaboration of professionals with expertise in a broad array of content areas and a variety of environments, including research, technology, personnel development, media...
Description: The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. (National Organization)
Description: VSDB provides an environment which fosters self-confident students who are contributing citizens and life-long learners and to be a resource of excellence for the communities of Virginia who serve students who are deaf/hard of hearing, blind/vision impaired and deafblind.
Description: The Virginia Department for the Deaf and Hard of Hearing (VDDHH) works to reduce the communication barriers between persons who are deaf or hard of hearing and those who are hearing, including family members, service providers, and the general public.
Description: SMALL STEPS: A Parent-Infant Education Program for Families Raising Children who are Deaf,Hard-of-Hearing, Blind, Low Vision and DeafBlind...honoring the small steps that promote happy families... FREE services offered through The Virginia School for the Deaf and the Blind
Description: Hands & Voices is dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We’re a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children. Our outreach activities, parent/professional collaboration, and advocacy efforts are focused on enabling Deaf and Hard-of-Hearing children to...
Description: A free public service, Virginia Relay connects people who are deaf, hard of hearing, DeafBlind or speech disabled with standard telephone users, relaying the conversation between both parties. Relay services are available 24 hours a day, 365 days a year, with no limit on the number or length of calls a user may make.
Description: The purpose is to promote and provide information and education regarding raising and educating a child with vision loss, provide emotional support, increase public awareness and foster communication and coordination of services among state and local agencies and organizations involved with providing services to children with visual impairments. VAAPVi is a state affiliate of NAPVI, the National Association for Parents of Children with Visual Impairments.
Description: The American Printing House for the Blind (APH) maintains and promotes the Louis Database of Accessible Materials, named in honor of Louis Braille. Louis contains information on accessible print materials produced by about 160 organizations throughout the United States. These materials include books in braille, large print, audio, and electronic file format. Louis also lists products developed by APH.
Description: The urgent mission of the Foundation Fighting Blindness, Inc. is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.
Description: Special Olympics Virginia is a year-round program of sports training and athletic competition for children and adults with intellectual disabilities. We serve more than 11,000 athletes through seven regional offices and 30 area programs. We are one of 52 U.S. programs, and part of a global movement that serves more than 3.7 million athletes in more than 170 counties.
Description: What do we do? We support schools, school districts, and institutions of higher education, with their community partners, in the development of high-quality emergency operations plans (EOPs) and comprehensive emergency management planning efforts. Established in October 2004 and administered by the U.S. Department of Education’s (ED) Office of Safe and Healthy Students (OSHS), the REMS TA Center provides a hub of information, resources, training, and services in the field of school and...
Description: Under mandate of federal and state law, VBPD works to promote and guide public policy changes and create opportunities for new approaches in our service delivery systems. VBPD is proud to have enriched the lives of Virginians with developmental and other disabilities by investing in over 200 best practice, model demonstration and research grant projects that have created change in the areas of education, employment, housing, early intervention, transportation, recreation, and community...
Description: Founded in 1983 by families and concerned professionals, the Brain Injury Association of Virginia is the only statewide non-profit organization in Virginia exclusively devoted to serving individuals with brain injury, their families, and those that care for and about them. Over 10,000 people find help from BIAV each year.  BIAV exists to be the primary source of information and personal support for thousands of individuals, families and professionals living in Virginia whose lives have been...
Description: The Infant & Toddler Connection of Virginia provides early intervention supports and services to infants and toddlers from birth through age two who are not developing as expected or who have a medical condition that can delay normal development. Early intervention supports and services focus on increasing the child's participation in family and community activities that are important to the family. In addition, supports and services focus on helping parents and other caregivers know how to find...
Description: The focus of SpecialQuest Birth–Five is on inclusion for children with disabilities ages birth through five (pre-kindergarten) and their families, particularly those in Head Start* along with Child Care, Early Intervention/Part C, Early Childhood Special Education/619, family support, and other related programs. (parent, parents)
Description: FPG researchers study important issues facing young children and their families, and we use this information to enhance policy and improve practice. We are committed to sharing the information we generate with the public and to supporting professionals’ understanding and use of evidence-based practices. Like other top tier research organizations, our work is published in the most respected journals and publications in our field. What sets us apart is our effort to ensure that parents,...
Description: This site offers a wide variety of professional development resources on topics of interest. Resource landing pads, archived webinars, links to online modules, tools for practitioners and system managers, and a training calendar are among the available resources. The information is specifically designed for early interventionists, students, families, faculty and all committed to ongoing learning.
Description: The AAHBEI serves families and those working in the field of early intervention with infants, toddlers, and preschoolers with special needs.
Description: The Arc is the world’s largest community based organization of and for people with intellectual and developmental disabilities. It provides an array of services and support for families and individuals and includes over 140,000 members affiliated through more than 850 state and local chapters across the nation. There are many chapters of the ARC in Virginia.
Description: The Early Childhood Technical Assistance Center is funded by the Office of Special Education Programs to improve state early intervention and early childhood special education service systems, increase the implementation of effective practices, and enhance the outcomes of these programs for young children and their families.
Description: The Center for Early Childhood Mental Health Consultation was created through a grant from the Office of Head Start. The Center translates research in healthy mental development into materials tailored to the needs of each of the target audiences, and makes them available on this website.  This site includes Best Practice Tutorials designed to enhance your skills and knowledge around how to implement effective mental health consultation in Head Start and Early Head Start (HS/EHS) programs.
Description: NAEYC is the leading membership association for those working with and on behalf of children from birth through age 8. NAEYC convenes thought leaders, teachers and other practitioners, researchers, and other stakeholders and sets standards of excellence for programs and teachers in early childhood education. NAEYC members include teachers, paraeducators, center directors, trainers, college educators, families of young children, and the public at large.
Description: This website offers "one-stop-shopping" for links to legislation, Federal Register Notices, Policy Guidance, and Grant Applications for the No Child Left Behind Act of 2001 (the Elementary and Secondary Education Act or ESEA).
Description: The Children’s Hemiplegia and Stroke Association (CHASA), founded in 1996, is a 501(c)(3) non-profit organization dedicated to improving the quality of life for children, teens, young adults and families affected by pediatric stroke and other causes of hemiparesis or hemiplegic cerebal palsy. Families contact CHASA for information and support and we strive to provide the latest up-to-date information. Our resources are simply educational; therefore, families are often reminded to check in...
Description: College Autism Spectrum (CAS) is an independent organization of professionals whose purpose is to assist students with autism spectrum disorders and their families. We help students with ASD explore and navigate college options before, during and through the college process. Additionally, we provide campuses and professionals with the tools and training to work effectively with students on the spectrum and to understand the challenges as well as the talents they bring. 
Description: The Virginia Department for Aging and Rehabilitative Services, in collaboration with community partners, provides and advocates for resources and services to improve the employment, quality of life, security, and independence of older Virginians, Virginians with disabilities, and their families. DARS includes the Adult Protective Services Division, the Community Based Services Division, Disability Determination Services, the Division for Rehabilitative Services, the Division for the Aging,...
Description: The Virginia Accessible Instructional Materials Center (AIM-VA) renewed the statewide license of Read:OutLoud, an accessible eBook and web reader for students with IEPs or 504 Plans. The AIM-VA Read:OutLoud license is now upgraded to a no-term license (no expiration), meaning that you will be able to use Read:OutLoud (version 6) on a continual basis. There will be no annual renewal fees.
Description: Kluge Children’s Rehabilitation Center (KCRC) is a place dedicated to serving children with special needs.
Description: Children’s Hospital of The King’s Daughters is the facility of choice for pediatric care in southeastern Virginia and northeastern North Carolina. Whether a child needs hospitalization, ongoing care for a chronic illness, outpatient surgery or primary care, CHKD Health System provides the staff, facilities and technologies that address the unique demands of childhood. The CHKD sports concussion program is the only comprehensive, multi-disciplinary sports concussion program in the...
Description: PTPofVA, Virginia’s state Parent to Parent office, supports families with children with disabilities and service providers across the Commonwealth with best practice in family support. PTPofVA provides training, technical assistance and advocacy support.
Description: The International Brain Injury Association (IBIA) is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury. (parents, parent)
Description: This CDC fact sheet is part of the "Heads Up to Schools: Know Your Concussion ABCs." Children and adolescents are among those at greatest risk for concussion. The potential for a concussion is greatest during activities where concussions can occur, such as during physcial education (PE) class, plaground time, or school-based sports activities. (CDC- Centers for Disease Control and Prevention)
Description: What is a concussion? A concussion is a type of brain injury that changes the way the brain normally works. A concussion is caused by a bump, blow, or jolt to the head. Concussions can also occur from a blow to the body that causes the head and brain to move rapidly back and forth. Even what seems to be a mild bump to the head can be serious. Concussions can have a more serious effect on a young,developing brain and need to be addressed correctly. What are the signs and symptoms of a concussion?...
Description: This CDC fact sheet is part of the "Heads Up to Schools: Know Your Concussion ABCs" program. It provides steps that school professionals can take to help facilitate a student’s return to school and recovery after a concussion. It emphasizes the importance of a collaborative approach by a team that includes not only school professionals, but also the student’s family and the health care professional(s) managing the medical aspects of the student’s recovery. (CDC- Centers for...
Description: CDC Injury Center's publications are designed for professional health practitioners, researchers, and the general public. Many of our publications are also available for ordering in hard copy at no cost. (CDC: Centers for Disease Control and Prevention) The Traumatic Brain Injury Publications include: Fact Sheets Patient Information Health Care Providers Sports Older Adults
Description: To help coaches, parents and athletes properly identify and respond to a concussion, CDC, in partnership with leading experts and organizations, developed the HEADS UP: Concussion in High School Sports initiative and materials. (CDC- Centers for Disease Control and Prevention) Specific Concussion Information for: Coaches Parents Sports Officials Teen Athletes
Description: To help ensure the health and safety of young athletes, CDC developed the HEADS UP Concussion in Youth Sports initiative to offer information about concussions to coaches, parents, and athletes involved in youth sports. The HEADS UP initiative provides important information on preventing, recognizing, and responding to a concussion. (CDC- Centers for Disease Control and Prevention) Specific Concussion Information for: Coaches Parents Sports Officials Young Athletes
Description: A concussion is caused by a bump, blow or jolt to the head. Concussions can also occur from a fall or blow to the body that causes the head to move rapidly back and forth. Even what seems to be a mild bump to the head can be serious. Be alert for any of the following signs and symptoms (Signs Observed by School Professionals and Symptoms Reported by the Student). (CDC- Centers for Disease Control and Prevention)
Description: Any one of your students could take a spill, knock his/her head, and get a concussion in any number of school settings ranging from the hallway, the playground, the cafeteria, and beyond. That’s why—whether you’re a principal, school nurse, teacher or other school professional—the CDC and several other distinguished medical, educational, school-health and school-professional organizations encourage you to use the HEADS UP to Schools: Know Your Concussion ABCs materials....
Description: There are many ways to help reduce the risk of a concussion or other serious brain injury both on and off the sports field, including: General Prevention, All Sports Baseball Basketball Cheerleading Field Hockey Football Ice Hockey Lacrosse Soccer Softball Volleyball Wrestling (CDC-Centers for Disease Control and Prevention)