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National / State Organizations

A multitude of National Organizations exist to provide information, support and research in a wide range of disabilities and medical conditions. Explore this page for an organization in your area of interest.
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Showing Results 1 - 50 of 313
Description: The National Rehabilitation Information Center (NARIC) is the library of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). We collect, catalog, and disseminate the articles, reports, curricula, guides, and other publications and products of the research projects funded by NIDILRR. NIDILRR funds more than 250 projects each year that conduct research on a wide range of issues including technology, health and function, independent living, and capacity...
Description: The Invisible Disabilities® Association is about believing. We believe you! The frequently invisible nature of illness and pain may lead to disbelief about that illness or pain by those surrounding the person who lives daily with invisible disabilities. This disbelief can lead to misunderstandings, rejection by friends, family and heath care providers. It may also lead to accusations of laziness or faking an illness. We are passionate about providing awareness that invisible illness,...
Description: The mission of AAHD is to advance health promotion and wellness initiatives for children and adults with disabilities. AAHD works to reduce health disparities between people with disabilities and the general population, and supports full community inclusion and accessibility. AAHD accomplishes its mission through advocacy, education, public awareness, and research efforts at the federal, state, and community levels. What is AAHD? The American Association on Health and Disability (AAHD) is a...
Description: The Military Outreach program through the Parent Educational Advocacy Training Center (PEATC) was created to provide awareness and assistance to military families, and professionals that support them, in Virginia through various outreach activities; networking - attending meetings that support military families, exhibiting and presenting workshops –as well as interacting and assisting parents and professionals. The Military Outreach Initiative continues to demonstrate its mission –...
Description: The purpose of the Individual and Family Support Program (IFSP) is to assist individuals on the IDD Waiver Wait List and their family members to access needed person-centered and family-centered resources, supports, services and other assistance as approved by the Department. The overall objective of the Individual and Family Support Program is to support the continued residence of an individual with IDD maintain his own home or the family home, which could include the home of a principal...
Description: We believe that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of their community. NFADB is the largest national nonprofit organization serving the deaf-blind community. What We Do Train and support families as they advocate for the needs of their child and family. Connect families to other families with similar interests and needs. Collaborate with other organizations to make sure...
Description: As a national technical assistance center funded by the federal Department of Education, NCDB works to improve the quality of life for children who are deaf-blind and their families by: Creating visibility and direction for identified priorities through a range of practices, activities, supports and partnerships. Identifying and encouraging new innovations in local, state, and national practice and policy. Promoting opportunity for reflection, debate, and constructive dialogue around ideas and...
Description: Giving people who are deaf-blind the tools to live, work and thrive in the communities of their choice.
Description: To develop and influence disability employment-related policies and practices, ODEP sponsors the following five policy and technical assistance resources: Employer Assistance and Resource Network on Disability Inclusion Job Accommodation Network LEAD Center National Collaborative on Workforce and Disability for Youth Partnership on Employment and Accessible Technology
Description: All students in tested grade levels and courses are expected to participate in Virginia’s assessment program, unless specifically exempted by state or federal law or by Board of Education regulations. Virginia’s assessment system includes students with disabilities and limited English proficient (LEP) students. Students with disabilities and LEP students may take Standards of Learning tests with or without accommodations or they may be assessed through alternate or alternative...
Description: NTACT (National Technical Assistance Center on Transition) is charged with assisting stakeholders in implementing evidence-based and promising practices and predictors that promote positive post-school outcomes for all students with disabilities. Throughout the website and other resources from NTACT, effective practices and predictors have been evaluated regarding the amount, type, and quality of the research conducted, and are labeled as either (a) evidence-based, (b) research-based, or (c)...
Description: The 2016 Autism Speaks Local Grant application opened on Monday, July 18 and will be open until Friday, September 23. Organizations providing services to children and adults with autism can apply for grants of up to $5,000. The goal of this program is to help promote local services that enhance the lives of people affected by autism. Since 2012, Autism Speaks has distributed nearly $2 million in grant funding to 365 organizations around the country through our Local Grants program in the areas...
Description: My Life My Community DBHDS (Virginia Department of Behavioral Health & Developmental Services) is committed to being good listeners, good partners and good stewards of the public resources entrusted to the agency. As we meet the challenges that lie ahead, we are dedicated to a system re-design that truly provides opportunity for citizens to receive the supports they need to live full lives in the community. This includes information on Waiver Amendments, Waiver Redesign...
Description: Who We Are The National Federation of Families for Children’s Mental Health is a national family-run organization linking more than 120 chapters and state organizations focused on the issues of children and youth with emotional, behavioral, or mental health needs and their families. It was conceived in Arlington, Virginia in February, 1989 by a group of 18 people determined to make a difference in the way the system works. Where We Come From Members of the National Federation come from all...
Description: The Center provides vocational training and medical interventions for people with disabilities to assist them in obtaining employment and to live more independently. In the more than two decades that I have been a part of the staff at the Center, I have been blessed to witness many extraordinary stories of our clients. In many instances, clients overcome significant obstacles and go on to achieve astounding accomplishments in their personal and professional lives. WWRC exists to provide the...
Description: The Children with Special Health Care Needs (CSHCN) Program promotes the optimal health and development of Virginia's children with special health care needs by working in partnership with families, service providers and communities. This includes Care Connection for Children, Child Development Services, Bleeding Disorders Program, and Sickle Cell Programs.
Description: The mission of the Sibling Leadership Network is to provide siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.
Description: Since 1996, SibNet (for adult brothers and sisters) has connected tens of thousands of sisters and brothers from around the globe with their peers, providing members with validation, information, and advice. Like the greater sibling community, SibNet has a diverse membership: We come from all economic, religious, and cultural backgrounds.  We have sibs who have autism, intellectual disabilities, cerebral palsy, Down syndrome, spina bifida, fragile X, and other disabilities.  Some of us...
Description: Sibshops provide young brothers and sisters (8-13 years of age) peer support and information in a lively, recreational setting. For the adults who run them and for the agencies that sponsor them, Sibshops are evidence of their loving concern for the family member who will have the longest-lasting relationship with a person who has a disability.
Description: SibTeen is a Facebook group where teenage sibs of people with disabilities can connect with others who get it. It's a fun and thoughtful group where members share unique concerns, joys, frustrations, and information with others who truly understand! Like SibNet and Sib20, SibTeen is a “closed” Facebook group.  This means that others can see that you belong to SibTeen, but they can't see what you've posted.  Only other SibTeen members can see what you’ve posted to...
Description: Sib20 is a Facebook group where twenty-something sibs of people with disabilities connect with others who "get it." It's sibling support from a young adult perspective. Sib20 is also a community—a remarkably thoughtful, nonjudgmental community of sisters and brothers who share concerns, challenges, insights, and joys that only other sibs are likely to understand. And members share information about services, resources, and strategies that help other members advocate for their brothers and...
Description: Your family needs to plan for how your sibling will live in the future, but starting the conversation can be very difficult. Here are some tips to prepare you to start talking with your family. What do you want to say to your parents and sibling? Think about what you want to tell your family about the importance of planning for the future. What role do you foresee playing in your sibling’s life in the future? What other obligations do you have in your life that you need to balance? What...
Description: Finding and safely recovering a missing child with autism presents unique and difficult challenges for families, law enforcement, first responders and search teams. The National Center for Missing & Exploited Children has special search protocols and checklists to help first responders.
Description: The Autism Wandering Awareness Alerts Response and Education (AWAARE) Collaboration is a working group of six national non-profit autism organizations whose mission is to prevent autism-related wandering incidents and deaths. NAA (National Autism Association) has created two digital safety toolkits that can be downloaded here: Caregiver Toolkit and First Responder Toolkit.  
Description: The Office of Community Support for Military Families with Special Needs is pleased to provide the Department of Defense Special Needs Parent Tool Kit — Birth to 18. This tool kit provides information and resources that will help you improve your quality of life and teaches you how to advocate for your child with special needs. Each of the six modules addresses issues you are likely to encounter throughout your child’s life. Whether your child has been recently diagnosed with a...
Description: Social Security touches the lives of nearly every American, often during times of personal hardship, transition, and uncertainty. Our programs serve as vital financial protection for working men and women, children, the disabled, and the elderly. We administer the largest disability program in the nation. Unfortunately, there are some common misconceptions about our program. We want to ensure that the American public understands this important program and has a clear picture of the individuals...
Description: This is a listing of independent organizations who provide a variety of direct supports and services to individuals with disabilities seeking employment or working.
Description: Using Virginia Workforce Centers or One-Stops, Virginia’s workforce can find the resources it needs to search for jobs and improve its professional skills. With about 70 centers located across Virginia, one is close by and ready to assist you with career services. Centers are available to anyone in the community seeking employment, including individuals with ASD and other disabilities and provide an array of services including vocational training and job placement services    
Description: Reading Rockets is a national multimedia project that offers a wealth of research-based reading strategies, lessons, and activities designed to help young children learn how to read and read better. Our reading resources assist parents, teachers, and other educators in helping struggling readers build fluency, vocabulary, and comprehension skills.
Description: Prader-Willi Syndrome is a complex genetic disorder of the 15th chromosome; the most common known genetic cause of life-threatening obesity in children.
Description: CEC is the voice and vision of special education and the premier association for special education professionals.
Description: CEC's (Council for Exceptional Children) divisions individually explore a single facet of special education in thoughtful detail, bringing together professionals to exchange ideas, stimulate research, and promote expertise in key areas of each fast-growing field. These include: Council of Administrators of Special Education (CASE), Council for Children with Behavioral Disorders (CCBD), Division for Research (CEC-DR), CEC Pioneers Division (CEC-PD), Council for Educational Diagnostic Services...
Description: The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living. Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects in this field.
Description: AIR is one of the world's largest behavioral and social science research and evaluation organizations. Our overriding goal is to use the best science available to bring the most effective ideas and approaches to enhancing everyday life. For us, making the world a better place is not wishful thinking. It is the goal that drives us.
Description: VSDB has expanded its webpages to include links to great resources and tools that can be used by families of and professionals serving children from birth to 22 years who are deaf/hard of hearing, blind/visually impaired, or deaf-blind.
Description: The Academy has over 75,000 members — registered dietitian nutritionists, dietetic technicians, registered, and other dietetics professionals holding undergraduate and advanced degrees in nutrition and dietetics, and students — and is committed to improving the nation's health and advancing the profession of dietetics through research, education and advocacy. This website has a section "For Kids," "For Parents," "For Men," "For Women," and "For Seniors." (National Organization)
Description: This podcast highlights the evidence that supports the link between healthy eating and improved academic achievement. It also identifies a few actions to support a healthy school nutrition environment to improve academic achievement.  (CDC - Centers for Disease Control and Prevention)
Description: The Mason Autism Support Initiative offers individualized, comprehensive social and academic supports to motivated Mason students with autism spectrum disorder in order to guide them through the transition into university life, and assist them in building skills necessary for success in the university environment and beyond. We encourage development of self-advocacy and college-level independent living skills by providing individual and group support within a collaborative model. Applications...
Description: The Brain Injury Association of America (BIAA) leads the nation in observing Brain Injury Awareness Month by conducting an awareness campaign in March each year. The theme for the 2015 to 2017 campaign is: Not Alone. The Not Alone campaign provides a platform for educating the general public about the incidence of brain injury and the needs of people with brain injuries and their families. The campaign also lends itself to outreach within the brain injury community to de-stigmatize the injury,...
Description: The goal of the Curb Cuts to the Middle Class Initiative – a federal cross agency initiative – is to coordinate and leverage existing resources to increase employment opportunities for people with disabilities. This resource guide is an example of federal agencies working together to ensure employers have the tools and resources they need to recruit, hire, retain, and promote people with disabilities.
Description: Founded in 2009, the National UDL Center supports the effective implementation of UDL by connecting stakeholders in the field and providing resources and information UDL Basics, Advocacy, Implementation, Research, Community, and Resources.
Description: Reading Makes Cent$ is a financial literacy program for Virginia students grades K–3.
Description: This includes resources for English, Math, Science and Social Studies as well as resources that are relevant for all content areas.
Description: Social studies educators teach students the content knowledge, intellectual skills, and civic values necessary for fulfilling the duties of citizenship in a participatory democracy. The mission of National Council for the Social Studies is to provide leadership, service, and support for all social studies educators.
Description: The Center on RTI is a national leader in supporting the successful implementation and scale-up of RTI and its components. It continues the work of the National Center on Response to Intervention (NCRTI), which AIR ran from 2007-2012 with a grant from the Office of Special Education Programs. When the Center’s federal funding ended in 2012, AIR took over upkeep and maintenance of the Center’s website and products and continues to provide support for states, districts, and schools...
Description: The National Autism Association is a parent-run 501(c)3 nonprofit organization. Founded in 2003, NAA is a parent-run advocacy organization and the leading voice on urgent issues related to severe autism, regressive autism, autism safety, autism abuse, and crisis prevention.
Description: Family Voices is a national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those with special health care needs. Working with family leaders and professional partners at the local, state, regional, and national levels since 1992, Family Voices has brought a respected family perspective to improving health care programs and policies and ensuring that health care systems include, listen to, and honor the voices of families.
Description: This site includes: Bullying Info and Facts, Educator Toolkits and Activities, Free Bookmarks, Information Handouts, Book Club and Students with Disabilities.
Description: The National Federation of the Blind has reached an agreement with the U.S. Department of Education that will make student loan information accessible to Americans who are blind. The agreement commits the Department of Education to make websites, forms, and documents related to the department's Direct Loan program equally accessible to applicants and borrowers who are blind.
Description: Safe Routes to School (SRTS) programs are improving children’s lives throughout the United States—making it safer to walk and bicycle to school, and encouraging a generation of young people to consider healthy, environmentally friendly transportation options.