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National / State Organizations

A multitude of National Organizations exist to provide information, support and research in a wide range of disabilities and medical conditions. Explore this page for an organization in your area of interest.
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Showing Results 1 - 50 of 327
Description: Children’s Challenging Behaviors is a six-hour workshop for parents of children and youth with mental health needs. In this workshop, a trained and experienced parent provides information to help parents understand typical behaviors versus challenging behaviors that require intervention. Parents learn when and how to seek help, develop parenting strategies, learn the ins and outs of special education and other educational supports, and discover community resources available to families and...
Description: We are celebrating over 30 years of non-profit services, advocacy and support to families and professionals involved with autism. We are the local affiliate of the national Autism Society of America that was founded in 1965. We provide 5 core services to maintain and increase the quality of life for everyone: Information and Referral – Contact us by email or phone for local resources and general information about autism and the services and programs we provide. Support – We are...
Description: Guardian ad litem (GAL) literally means “guardian for the suit.” A guardian ad litem in Virginia is an attorney appointed by a judge to assist the court in determining the circumstances of a matter before the court. It is the fundamental responsibility of the guardian ad litem to provide independent recommendations to the court about the client’s best interests, which can be different from advocating for what the client wants, and to bring balance to the decision-making...
Description: Project LIFE (Living Independently, Focusing on Empowerment) helps youth in Virginia succeed when they age out of foster care. We do that by helping youth directly and by supporting the professionals who work with them. Our services help youth in foster care avoid homelessness, helplessness and hopelessness. Instead, they have the knowledge and support they need to get jobs, continue school, live decently and give back to their communities. While youth are in foster care, decisions are often...
Description: Virginia's Medicaid Managed Care program is here to help you choose the best health plans and providers for you and your family. Contact our Managed Care HelpLine.  We can help! Toll-free number: 1-800-643-2273TTY: 1-800-817-6608Hours of operation: Monday – Friday, 8:30 a.m. – 6:00 p.m. We can speak with you in other languages.
Description: This includes: LONG-TERM CARE RESOURCES & GUIDEBOOKS LTC DIVISION MEDICAID FACT SHEETS AND RELATED DOCUMENTS PHONE NUMBERS FOR MEDICAID RECIPIENTS: PURPOSE OF THE DIVISION OF LONG-TERM CARE ORGANIZATIONAL STRUCTURE OF THE DIVISION OF LONG TERM CARE AGING AND MEDICAL SERVICES DISABILITY AND SUPPORT SERVICES (at DBHDS for program operational management) DATA AND QUALITY MANAGEMENT REVIEW WAIVER OPERATIONS & CONTRACTS REGULATORY FUNCTIONS & RESPONSIBILITIES LTC RESPONSIBILITY TO ENSURE...
Description: The power to Elevate Virginia is rooted in the Commonwealth’s people and its businesses.  Whether it is the businesses that already call Virginia home or new companies considering a new location, the strength of the workforce is their primary concern.  Virginia’s future economic strength and global competitiveness depend on the readiness of a highly skilled and well-trained workforce to fill the increasingly complex jobs that mark the 21st century economy. Virginia’s...
Description: CASA is the Court Appointed Special Advocate Program. CASA is a child advocacy organization that seeks to provide trained volunteers to speak for abused and neglected children who are the subjects of juvenile court proceedings. CASA volunteers advocate for safe, permanent homes for children. CASA began in 1977 in Seattle, Washington by Judge David Soukup who saw the need for more information on cases involving children in his court. The social services and legal systems were overburdened and...
Description: This includes: About Services for Older Youth & Independent Living Overview Eligibility, Services, Guidance & Procedures Educational Opportunities Community College Tuition Grant Education and Training Vouchers (ETV) Great Expectations Video Modules- Module 1: What is a Transition Plan and why should I do one? Module 2: Who is involved in Transition Planning? Module 3: How do I develop a Transition Plan? Module 4: What do I need to know to effectively plan for myself? Module 5: What...
Description: The Department of Juvenile Justice operates and is responsible for the vast majority of local Court Service Units (often known as juvenile probation offices) across the Commonwealth, as well as the two state-operated Juvenile Correctional Centers, Beaumont and Bon Air. On any given day, the Department has somewhere between 4,500 and 5,000 youth under some kind of supervision, with more than 90 percent of those youth being supervised in their communities through diversion, probation or parole....
Description: There is a juvenile and domestic relations district court in each Virginia city and county. In Virginia, a juvenile is any person under 18 years of age. The juvenile and domestic relations district court hears all matters involving juveniles such as criminal or traffic matters. Juvenile delinquency cases are cases involving a minor under the age of 18 who has been accused of committing an offense that would be considered criminal if committed by an adult. Other juvenile offenses may be referred...
Description: VaLegalAid.org is a Virginia Partnership for Equal Justice Website Project. It is an ambitious attempt by Virginia legal aid offices and their partners to provide complete, accurate, up-to-date information on poverty law issues in an interactive and easily accessible format. The intent is to allow access to this information by legal aid attorneys, probono attorneys, clients, advocates and providers of services to legal aid's traditional client base. Pro Bono Net Pro Bono Net is a unique...
Description: The Children's Services Act was designed to ensure that youth and their families receive the services they need. Information is presented below to help families understand the process to access services. What is the Community Policy and Management Team? The "CPMT" coordinates agency efforts, manages the available funds, and sees that eligible youths and their families are referred for assessment as appropriate.What is the Family Assessment and Planning Team? The "FAPT" looks at the strengths and...
Description: This is an alphabetical listed of Virginia School Divisions which includes contact information for the division and its staff.
Description: The mission of Virginia's public education system is to educate students in the fundamental knowledge and academic subjects that they need to become capable, responsible, and self-reliant citizens. Therefore, the mission of the Virginia Board of Education and the superintendent of public instruction, in cooperation with local school boards, is to increase student learning and academic achievement.
Description: The Local School Divisions Foster Care Liaisons is a listing of the contact information (email address and phone numbers) for school divisions in Virginia. The Virgina Educational Stability Liaisons is a listing of the contact information (email address and phone numbers) for the Liaisons from the Department of Social Services.
Description: Magellan of Virginia was selected by the Virginia Department of Medical Assistance Services (DMAS) to serve as the Behavioral Health Services Administrator (BHSA). Magellan administers behavioral health services for members enrolled in Virginia’s Medicaid and FAMIS programs. This site is for members receiving behavioral health services in Virginia, their families and friends, and providers. Mission:Magellan of Virginia ensures quality behavioral health services are delivered to...
Description: Explore our Web site to learn how we are living our mission to promote and provide equal access to communication and learning for students who are blind, visually impaired, deaf, hard of hearing, or deaf-blind. The DCMP is an idea that works thanks to funding by the U.S. Department of Education and administration by the National Association of the Deaf. Services The DCMP provides services designed to support and improve the academic achievement of students who are blind, visually impaired, deaf,...
Description: The National Rehabilitation Information Center (NARIC) is the library of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). We collect, catalog, and disseminate the articles, reports, curricula, guides, and other publications and products of the research projects funded by NIDILRR. NIDILRR funds more than 250 projects each year that conduct research on a wide range of issues including technology, health and function, independent living, and capacity...
Description: The Invisible Disabilities® Association is about believing. We believe you! The frequently invisible nature of illness and pain may lead to disbelief about that illness or pain by those surrounding the person who lives daily with invisible disabilities. This disbelief can lead to misunderstandings, rejection by friends, family and heath care providers. It may also lead to accusations of laziness or faking an illness. We are passionate about providing awareness that invisible illness,...
Description: The mission of AAHD is to advance health promotion and wellness initiatives for children and adults with disabilities. AAHD works to reduce health disparities between people with disabilities and the general population, and supports full community inclusion and accessibility. AAHD accomplishes its mission through advocacy, education, public awareness, and research efforts at the federal, state, and community levels. What is AAHD? The American Association on Health and Disability (AAHD) is a...
Description: The Military Outreach program through the Parent Educational Advocacy Training Center (PEATC) was created to provide awareness and assistance to military families, and professionals that support them, in Virginia through various outreach activities; networking - attending meetings that support military families, exhibiting and presenting workshops –as well as interacting and assisting parents and professionals. The Military Outreach Initiative continues to demonstrate its mission –...
Description: The purpose of the Individual and Family Support Program (IFSP) is to assist individuals on the IDD Waiver Wait List and their family members to access needed person-centered and family-centered resources, supports, services and other assistance as approved by the Department. The overall objective of the Individual and Family Support Program is to support the continued residence of an individual with IDD maintain his own home or the family home, which could include the home of a principal...
Description: We believe that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of their community. NFADB is the largest national nonprofit organization serving the deaf-blind community. What We Do Train and support families as they advocate for the needs of their child and family. Connect families to other families with similar interests and needs. Collaborate with other organizations to make sure...
Description: As a national technical assistance center funded by the federal Department of Education, NCDB works to improve the quality of life for children who are deaf-blind and their families by: Creating visibility and direction for identified priorities through a range of practices, activities, supports and partnerships. Identifying and encouraging new innovations in local, state, and national practice and policy. Promoting opportunity for reflection, debate, and constructive dialogue around ideas and...
Description: Giving people who are deaf-blind the tools to live, work and thrive in the communities of their choice.
Description: To develop and influence disability employment-related policies and practices, ODEP sponsors the following five policy and technical assistance resources: Employer Assistance and Resource Network on Disability Inclusion Job Accommodation Network LEAD Center National Collaborative on Workforce and Disability for Youth Partnership on Employment and Accessible Technology
Description: All students in tested grade levels and courses are expected to participate in Virginia’s assessment program, unless specifically exempted by state or federal law or by Board of Education regulations. Virginia’s assessment system includes students with disabilities and limited English proficient (LEP) students. Students with disabilities and LEP students may take Standards of Learning tests with or without accommodations or they may be assessed through alternate or alternative...
Description: NTACT (National Technical Assistance Center on Transition) is charged with assisting stakeholders in implementing evidence-based and promising practices and predictors that promote positive post-school outcomes for all students with disabilities. Throughout the website and other resources from NTACT, effective practices and predictors have been evaluated regarding the amount, type, and quality of the research conducted, and are labeled as either (a) evidence-based, (b) research-based, or (c)...
Description: My Life My Community DBHDS (Virginia Department of Behavioral Health & Developmental Services) is committed to being good listeners, good partners and good stewards of the public resources entrusted to the agency. As we meet the challenges that lie ahead, we are dedicated to a system re-design that truly provides opportunity for citizens to receive the supports they need to live full lives in the community. This includes information on Waiver Amendments, Waiver Redesign...
Description: Who We Are The National Federation of Families for Children’s Mental Health is a national family-run organization linking more than 120 chapters and state organizations focused on the issues of children and youth with emotional, behavioral, or mental health needs and their families. It was conceived in Arlington, Virginia in February, 1989 by a group of 18 people determined to make a difference in the way the system works. Where We Come From Members of the National Federation come from all...
Description: The Center provides vocational training and medical interventions for people with disabilities to assist them in obtaining employment and to live more independently. In the more than two decades that I have been a part of the staff at the Center, I have been blessed to witness many extraordinary stories of our clients. In many instances, clients overcome significant obstacles and go on to achieve astounding accomplishments in their personal and professional lives. WWRC exists to provide the...
Description: People with Special Health Care Needs includes: Medical Neighborhood Care Connection for Children Bleeding Disorders Program Child Development Services Sickle Cell Programs Metabolic Formula and Food Program
Description: The mission of the Sibling Leadership Network is to provide siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.
Description: Since 1996, SibNet (for adult brothers and sisters) has connected tens of thousands of sisters and brothers from around the globe with their peers, providing members with validation, information, and advice. Like the greater sibling community, SibNet has a diverse membership: We come from all economic, religious, and cultural backgrounds.  We have sibs who have autism, intellectual disabilities, cerebral palsy, Down syndrome, spina bifida, fragile X, and other disabilities.  Some of us...
Description: Sibshops provide young brothers and sisters (8-13 years of age) peer support and information in a lively, recreational setting. For the adults who run them and for the agencies that sponsor them, Sibshops are evidence of their loving concern for the family member who will have the longest-lasting relationship with a person who has a disability.
Description: SibTeen is a Facebook group where teenage sibs of people with disabilities can connect with others who get it. It's a fun and thoughtful group where members share unique concerns, joys, frustrations, and information with others who truly understand! Like SibNet and Sib20, SibTeen is a “closed” Facebook group.  This means that others can see that you belong to SibTeen, but they can't see what you've posted.  Only other SibTeen members can see what you’ve posted to...
Description: Sib20 is a Facebook group where twenty-something sibs of people with disabilities connect with others who "get it." It's sibling support from a young adult perspective. Sib20 is also a community—a remarkably thoughtful, nonjudgmental community of sisters and brothers who share concerns, challenges, insights, and joys that only other sibs are likely to understand. And members share information about services, resources, and strategies that help other members advocate for their brothers and...
Description: Your family needs to plan for how your sibling will live in the future, but starting the conversation can be very difficult. Here are some tips to prepare you to start talking with your family. What do you want to say to your parents and sibling? Think about what you want to tell your family about the importance of planning for the future. What role do you foresee playing in your sibling’s life in the future? What other obligations do you have in your life that you need to balance? What...
Description: Finding and safely recovering a missing child with autism presents unique and difficult challenges for families, law enforcement, first responders and search teams. The National Center for Missing & Exploited Children has special search protocols and checklists to help first responders.
Description: The Autism Wandering Awareness Alerts Response and Education (AWAARE) Collaboration is a working group of six national non-profit autism organizations whose mission is to prevent autism-related wandering incidents and deaths. NAA (National Autism Association) has created two digital safety toolkits that can be downloaded here: Caregiver Toolkit and First Responder Toolkit.  
Description: The Office of Community Support for Military Families with Special Needs is pleased to provide the Department of Defense Special Needs Parent Tool Kit — Birth to 18. This tool kit provides information and resources that will help you improve your quality of life and teaches you how to advocate for your child with special needs. Each of the six modules addresses issues you are likely to encounter throughout your child’s life. Whether your child has been recently diagnosed with a...
Description: Social Security touches the lives of nearly every American, often during times of personal hardship, transition, and uncertainty. Our programs serve as vital financial protection for working men and women, children, the disabled, and the elderly. We administer the largest disability program in the nation. Unfortunately, there are some common misconceptions about our program. We want to ensure that the American public understands this important program and has a clear picture of the individuals...
Description: This is a listing of independent organizations who provide a variety of direct supports and services to individuals with disabilities seeking employment or working.
Description: Using Virginia Workforce Centers or One-Stops, Virginia’s workforce can find the resources it needs to search for jobs and improve its professional skills. With about 70 centers located across Virginia, one is close by and ready to assist you with career services. Centers are available to anyone in the community seeking employment, including individuals with ASD and other disabilities and provide an array of services including vocational training and job placement services.
Description: Reading Rockets is a national multimedia project that offers a wealth of research-based reading strategies, lessons, and activities designed to help young children learn how to read and read better. Our reading resources assist parents, teachers, and other educators in helping struggling readers build fluency, vocabulary, and comprehension skills.
Description: Prader-Willi Syndrome is a complex genetic disorder of the 15th chromosome; the most common known genetic cause of life-threatening obesity in children.
Description: CEC is the voice and vision of special education and the premier association for special education professionals.
Description: CEC's (Council for Exceptional Children) divisions individually explore a single facet of special education in thoughtful detail, bringing together professionals to exchange ideas, stimulate research, and promote expertise in key areas of each fast-growing field. These include: Council of Administrators of Special Education (CASE), Council for Children with Behavioral Disorders (CCBD), Division for Research (CEC-DR), CEC Pioneers Division (CEC-PD), Council for Educational Diagnostic Services...
Description: The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living. Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects in this field.