National / State Organizations
A multitude of National Organizations exist to provide information, support and research in a wide range of disabilities and medical conditions. Explore this page for an organization in your area of interest.Skip to search results
Showing Results 51 - 100 of 318
Description: People with Special Health Care Needs includes: Medical Neighborhood Care Connection for Children Bleeding Disorders Program Child Development Services Sickle Cell Programs Metabolic Formula and Food Program
Description: The mission of the Sibling Leadership Network is to provide siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.
Description: Since 1996, SibNet (for adult brothers and sisters) has connected tens of thousands of sisters and brothers from around the globe with their peers, providing members with validation, information, and advice. Like the greater sibling community, SibNet has a diverse membership: We come from all economic, religious, and cultural backgrounds. We have sibs who have autism, intellectual disabilities, cerebral palsy, Down syndrome, spina bifida, fragile X, and other disabilities. Some of us...
Description: Sibshops provide young brothers and sisters (8-13 years of age) peer support and information in a lively, recreational setting. For the adults who run them and for the agencies that sponsor them, Sibshops are evidence of their loving concern for the family member who will have the longest-lasting relationship with a person who has a disability.
Description: SibTeen is a Facebook group where teenage sibs of people with disabilities can connect with others who get it. It's a fun and thoughtful group where members share unique concerns, joys, frustrations, and information with others who truly understand! Like SibNet and Sib20, SibTeen is a “closed” Facebook group. This means that others can see that you belong to SibTeen, but they can't see what you've posted. Only other SibTeen members can see what you’ve posted to...
Description: Sib20 is a Facebook group where twenty-something sibs of people with disabilities connect with others who "get it." It's sibling support from a young adult perspective. Sib20 is also a community—a remarkably thoughtful, nonjudgmental community of sisters and brothers who share concerns, challenges, insights, and joys that only other sibs are likely to understand. And members share information about services, resources, and strategies that help other members advocate for their brothers and...
Description: Your family needs to plan for how your sibling will live in the future, but starting the conversation can be very difficult. Here are some tips to prepare you to start talking with your family. What do you want to say to your parents and sibling? Think about what you want to tell your family about the importance of planning for the future. What role do you foresee playing in your sibling’s life in the future? What other obligations do you have in your life that you need to balance? What...
Description: The Autism Wandering Awareness Alerts Response and Education (AWAARE) Collaboration is a working group of six national non-profit autism organizations whose mission is to prevent autism-related wandering incidents and deaths. NAA (National Autism Association) has created two digital safety toolkits that can be downloaded here:Caregiver Toolkit and First Responder Toolkit.
Description: Finding and safely recovering a missing child with autism presents unique and difficult challenges for families, law enforcement, first responders and search teams. The National Center for Missing & Exploited Children has special search protocols and checklists to help first responders.
Description: Social Security touches the lives of nearly every American, often during times of personal hardship, transition, and uncertainty. Our programs serve as vital financial protection for working men and women, children, the disabled, and the elderly. We administer the largest disability program in the nation. Unfortunately, there are some common misconceptions about our program. We want to ensure that the American public understands this important program and has a clear picture of the individuals...
Description: The Office of Community Support for Military Families with Special Needs is pleased to provide the Department of Defense Special Needs Parent Tool Kit — Birth to 18. This tool kit provides information and resources that will help you improve your quality of life and teaches you how to advocate for your child with special needs. Each of the six modules addresses issues you are likely to encounter throughout your child’s life. Whether your child has been recently diagnosed with a...
Description: Reading Rockets is a national multimedia project that offers a wealth of research-based reading strategies, lessons, and activities designed to help young children learn how to read and read better. Our reading resources assist parents, teachers, and other educators in helping struggling readers build fluency, vocabulary, and comprehension skills.
Description: Prader-Willi Syndrome is a complex genetic disorder of the 15th chromosome; the most common known genetic cause of life-threatening obesity in children.
Description: CEC is the voice and vision of special education and the premier association for special education professionals.
Description: CEC's (Council for Exceptional Children) divisions individually explore a single facet of special education in thoughtful detail, bringing together professionals to exchange ideas, stimulate research, and promote expertise in key areas of each fast-growing field. These include: Council of Administrators of Special Education (CASE), Council for Children with Behavioral Disorders (CCBD), Division for Research (CEC-DR), CEC Pioneers Division (CEC-PD), Council for Educational Diagnostic Services...
Description: The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living. Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects in this field.
Description: AIR is one of the world's largest behavioral and social science research and evaluation organizations. Our overriding goal is to use the best science available to bring the most effective ideas and approaches to enhancing everyday life. For us, making the world a better place is not wishful thinking. It is the goal that drives us.
Description: VSDB has expanded its webpages to include links to great resources and tools that can be used by families of and professionals serving children from birth to 22 years who are deaf/hard of hearing, blind/visually impaired, or deaf-blind.
Description: The Academy has over 75,000 members — registered dietitian nutritionists, dietetic technicians, registered, and other dietetics professionals holding undergraduate and advanced degrees in nutrition and dietetics, and students — and is committed to improving the nation's health and advancing the profession of dietetics through research, education and advocacy. This website has a section "For Kids," "For Parents," "For Men," "For Women," and "For Seniors." (National Organization)
Description: This podcast highlights the evidence that supports the link between healthy eating and improved academic achievement. It also identifies a few actions to support a healthy school nutrition environment to improve academic achievement. (CDC - Centers for Disease Control and Prevention)
Description: The Mason Autism Support Initiative (MASI) is a comprehensive, fee-based program that provides additional intensive support services to students on the Autism Spectrum beyond typical higher education accommodations. MASI uses a team-based approach to assist students in achieving their goals in college. An individualized plan of support is created for each student in MASI at the beginning of each academic year. Through this program, students have access to Peer Mentor (undergraduate student)...
Description: Reading Makes Cent$ is a financial literacy program for Virginia students grades K–3.
Description: Social studies educators teach students the content knowledge, intellectual skills, and civic values necessary for fulfilling the duties of citizenship in a participatory democracy. The mission of National Council for the Social Studies is to provide leadership, service, and support for all social studies educators.
Description: The Center on RTI provides services on a fee for service basis to assist states, districts, and schools to successfully implement and scale-up MTSS/RTI and its components -- screening students, monitoring student progress, providing evidence-based interventions that adjust in intensity depending on a student's responsiveness, and identifying students with learning disabilities. To determine what services may be needed, staff collaboratively problem-solve with the requesting state, district, or...
Description: The National Autism Association is a parent-run 501(c)3 nonprofit organization. Founded in 2003, NAA is a parent-run advocacy organization and the leading voice on urgent issues related to severe autism, regressive autism, autism safety, autism abuse, and crisis prevention.
Description: Family Voices is a national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those with special health care needs. Working with family leaders and professional partners at the local, state, regional, and national levels since 1992, Family Voices has brought a respected family perspective to improving health care programs and policies and ensuring that health care systems include, listen to, and honor the voices of families.
Description: This site includes: Bullying Info and Facts, Educator Toolkits and Activities, Free Bookmarks, Information Handouts, Book Club and Students with Disabilities.
Description: Over the past 19 years, Prudential Spirit of Community Awards have been given to more than 2,625 middle and high school students across Virginia for helping the less fortunate, promoting health and safety, protecting the environment, and serving their communities through many other volunteer activities. These awards, presented nationwide by Prudential Financial, Inc., in partnership with the National Association of Secondary School Principals (NASSP), honor outstanding community service by young...
Description: The National Association for the Education of Homeless Children and Youth (NAEHCY) is the voice and social conscience for the education of children and youth experiencing homelessness. NAEHCY accomplishes this through advocacy, partnerships, and education.
Description: States and local governments can play a significant role in advancing the employment of individuals with disabilities through their own hiring activities. (EARN- Employer Assistance and Resource Network)
Description: This site provides resources, training, and links to Infant Mental Health endorsement. The goal of Earch Childhood Mental Health of Virginia is to develop of a comprehensive system of care for infant and child mental health serving children birth through age eight and their families/caregivers, which: Engages parents as partners; Provides high quality supports and services to families; Is grounded in developmental knowledge; Includes family and child centered practices and policy & cultural...
Description: Disability Scoop is the nation’s premier source for developmental disability news. With daily coverage of autism, intellectual disability, cerebral palsy, Down syndrome and more, it offers timely and comprehensive information about issues that matter to the developmental disability community.
Description: Individuals with disabilities are a vital and dynamic part of our Nation, and their contributions have impacted countless lives. People with disabilities bring immeasurable value to our workplaces, and we will continue to address the challenges to employment that must be overcome.
Description: Are you looking for information on a health condition or perhaps trying to find health services? There are lots of medical sites out there that explain conditions in terms you don’t need to be a doctor to understand. And there are sites that can help you locate healthcare services in your community.
Description: Welcome to the alphabet soup of special education! The disability community is full of acronyms that people constantly use in writing and in conversation, and it’s important to know what those acronyms stand for. Acronyms are used in order to abbreviate names or phrases. The CPIR is pleased to provide this list of special education and disability-related acronyms, and hope it helps our readers quickly connect with the meaning of pivotal acronyms in the field.
Description: Once a student with a disability leaves high school, other agencies are available to assist with putting the individual in contact with helpful resources. Table of Contents Employment Postsecondary Education Recreation Independent Living Assistive Technology Disability Living Online
Description: Use this checklist to monitor students who come to your office with a head injury. Students should be monitored for a minimum of 30 minutes. Check for signs or symptoms when the student first arrives at your office, fifteen minutes later, and at the end of 30 minutes. Students who experience one or more of the signs or symptoms of concussion after a bump, blow, or jolt to the head should be referred to a health care professional with experience in evaluating for concussion. For those instances...
Description: Supports the national dialogue to build awareness of mental health problems in communities. Presents data and other facts about mental illness in the U.S. to help educate and inform communities and start a conversation about mental illness. (The Information Graphic Reference List is located at http://store.samhsa.gov/shin/content/SMA13-4725/SMA13-4725_Reference.pdf.) (SAMHSA- Substance Abuse & Mental Health Services Administration)
Description: Apoya el diálogo nacional para crear conciencia acerca de los problemas de salud mental en las comunidades. Presenta datos y otra información sobre la enfermedad mental en los Estados Unidos para ayudar a educar e informar a las comunidades e iniciar un diálogo acerca de la enfermedad mental. (Información gráfica- Lista de referencia- http://store.samhsa.gov/shin/content//SMA13-4725SPAN/InformationGraphicReferenceListSpanish.pdf) (SAMHSA- Substance Abuse & Mental Health Services Administration)
Description: Sleep affects how children feel and function. By helping your child to get the recommended amount of sleep, you can improve your child's health, psychological well-being , and safety. Sleep is key to your child's growth and development as well as his/her ability to learn. (Virginia Academy of Sleep Medicine)
Description: This includes 10 tips for parents to support their child's science learning.
Description: ¿Qué es el acoso?, Acoso por Internet, ¿Quién está en riesgo?, Prevenir el acoso, Responder ante el acoso, Recibir ayuda ahora (A federal government website managed by the U.S. Department of Health & Human Services.)
Description: This site includes sections on: What is bullying, Cyber Bullying, Who is at Risk, Prevent Bullying, Respond to Bullying and Get Help Now. (A federal government website managed by the U.S. Department of Health & Human Services.)
Description: STRYVE, or Striving To Reduce Youth Violence Everywhere, is a national initiative led by the Centers for Disease Control and Prevention (CDC) to prevent youth violence before it starts among young people ages 10 to 24. STRYVE’s vision is safe and healthy youth who can achieve their full potential as connected and contributing members of thriving, violence-free families, schools, and communities. STRYVE’s goals are to: Increase awareness that youth violence can and should be...
Description: The first 3 years of life, when the brain is developing and maturing, is the most intensive period for acquiring speech and language skills. These skills develop best in a world that is rich with sounds, sights, and consistent exposure to the speech and language of others. There appear to be critical periods for speech and language development in infants and young children when the brain is best able to absorb language. If these critical periods are allowed to pass without exposure to language,...
Description: Spina bifida is one of the most common birth defects in the United States, affecting some 1,5physic00 babies each year. 2 Spina bifida happens during the first month or so of pregnancy and means that the baby’s spine did not close completely. Damage to the nerves and the spinal cord may result.
Description: These resources were compiled by the Parent Educational Advocacy Training Center (PEATC).
Description: Educación Especial Nacional y Estatal
Description: This guide addresses home and community-based services for people with disabilities. The Guide was prepared by the Endependence Center, Norfolk, VA.
Description: Gilles de la Tourette syndrome (Tourette Syndrome or TS) is a neurological disorder which becomes evident in early childhood or adolescence. The first symptoms usually are involuntary movements (tics) of the face, arms, limbs or trunk. These tics are frequent, repetitive and rapid. The most common first symptom is a facial tic (eye blink, nose twitch, grimace), and is replaced or added to by other tics of the neck, trunk, and limbs. (National Organization)