National / State Organizations
A multitude of National Organizations exist to provide information, support and research in a wide range of disabilities and medical conditions. Explore this page for an organization in your area of interest.
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Description: MASI is a comprehensive, fee-based program that provides additional intensive support services to students on the Autism Spectrum beyond typical higher education accommodations. MASI uses a team-based approach to assist students in achieving their goals in college.
Description: Vision Statement: A life of possibilities for all Virginians Mission Statement: Supporting individuals by promoting recovery, self-determination, and wellness in all aspects of life
Description: The mission of National Council for the Social Studies is to advocate and build capacity for high-quality social studies by providing leadership, services, and support to educators. Social studies is the integrated study of the social sciences and humanities to promote civic competence. Within the school program, social studies provides coordinated, systematic study drawing upon such disciplines as anthropology, archaeology, economics, geography, history, law, philosophy,...
Description: The mission of the National Autism Association is to respond to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential. They provide advocacy, research, education, direct tools, thoughtful awareness and hope.
Description: Family Voices is a national family-led organization promoting quality health care for all children and youth with special health care needs. Working with family leaders and professional partners at the local, state, regional, and national levels since 1992, Family Voices has brought a respected family perspective to improving health care programs and policies and ensuring that health care systems include, listen to, and honor the voices of families.
Description: At least 28 percent of students 12-18 are bullied at school. As much as 6 percent of students report having been threatened with harm. Maintaining a safe, nurturing school environment for students is any school leader’s top priority. These resources can help you combat bullying in your school.
Description: How is bullying defined? Does bullying happen more often than adults think? What if my child is the one bullying? How does bullying impact a students’ health? Here you will find the answers to these questions and many more, along with helpful information about cyberbullying, students with disabilities, and research.
Description: The National Association for the Education of Homeless Children and Youth (NAEHCY) is a national membership association dedicated to educational equity and excellence for children and youth experiencing homelessness. NAEHCY’s vision is that every child and youth experiencing homelessness is successful in school, from early childhood through higher education.
Description: Early Childhood Mental Health Virginia (ECMHVA) is a statewide initiative focused on the development, implementation and sustainability of a comprehensive early childhood system of care for infant and early childhood mental health. The Early Childhood Mental initiative collaborates with early childhood agencies and representation across the Commonwealth to identify opportunities to increase access to resources and services by researching and securing funding for a continuum of quality in...
Description: Disability Scoop is the nation’s premier source for developmental disability news. With daily coverage of autism, intellectual disability, cerebral palsy, Down syndrome and more, it offers timely and comprehensive information about issues that matter to the developmental disability community.
Description: Are you looking for information on a health condition or perhaps trying to find health services? There are lots of medical sites out there that explain conditions in terms you don’t need to be a doctor to understand. And there are sites that can help you locate healthcare services in your community.
Description: Welcome to the alphabet soup of special education! The disability community is full of acronyms that people constantly use in writing and in conversation, and it’s important to know what those acronyms stand for. Acronyms are used in order to abbreviate names or phrases. The CPIR is pleased to provide this list of special education and disability-related acronyms, and hope it helps our readers quickly connect with the meaning of pivotal acronyms in the field.
Description: 1. Value your child's questions. 2. Explore and find the answers together. 3. Give children time and space to explore. 4. Acceot that explorations are often messy. And more...
Description: When adults respond quickly and consistently to bullying behavior they send the message that it is not acceptable. Research shows this can stop bullying behavior over time. Parents, school staff, and other adults in the community can help kids prevent bullying by talking about it, building a safe school environment, and creating a community-wide bullying prevention strategy.
Description: Spina bifida is one of the most common birth defects in the United States, affecting some 1,500 babies each year. Spina bifida happens during the first month or so of pregnancy and means that the baby’s spine did not close completely. Damage to the nerves and the spinal cord may result. In general, there are three types of spina bifida. These are: Spina bifida occulta: In this mildest form of spina bifida, there’s a small defect or gap in one or more of the vertebrae (bones) of the...
Description: The first 3 years of life, when the brain is developing and maturing, is the most intensive period for acquiring speech and language skills. These skills develop best in a world that is rich with sounds, sights, and consistent exposure to the speech and language of others. There appear to be critical periods for speech and language development in infants and young children when the brain is best able to absorb language. If these critical periods are allowed to pass without exposure to language,...
Description: Latinx Resources - El programa de Alcance Latinx de PEATC se enfoca en brindar educación y recursos a nuestra población Hispana/Latinx en el estado de Virginia, completamente en español. El objetivo de este programa es difundir información en el idioma con el que las familias se sientan más cómodas, pero al mismo tiempo teniendo en cuenta su cultura y creencias. Al brindar nuestros servicios en español, PEATC asegura la inclusión...
Description: Key Facts about Tourette Syndrome: Tourette Syndrome (TS) is a neurodevelopmental disorder that becomes evident in early childhood or adolescence. It is part of the spectrum of Tic Disorders and is characterized by motor and vocal tics. Tourette Syndrome and other Tic Disorders are not rare. The current estimates are that 1 out of every 160 children between the ages of 5-17 in the United States has TS and that 1 out of every 100 children has TS or another Tic Disorder. Some Tic Disorders may be...
Description: The Library and Resource Center (LRC) is a component of the Department for the Blind and Vision Impaired (DBVI) from which two fundamental programs are administered. Library services are offered to persons who are print disabled. The Library and Resource Center service is provided to local school divisions to support education of visually impaired and blind children.
Description: AAIDD, (formerly AAMR -- American Association on Mental Retardation), is the oldest and largest interdisciplinary organization of professionals and others concerned about intellectual and developmental disabilities. We're tireless promoters of progressive policies, sound research, effective practices and universal human rights for people with intellectual and developmental disabilities.
Description: All the materials found on the CPIR Hub have been created and archived for Parent Centers around the country to help them provide support and services to the families they serve. The CPIR employs a user-centered process, gathering the perspectives of our experienced audience—Parent Center staff members and other experts—every step of the way, to create products and services that increase Parent Centers’ knowledge and capacity in specific domains.
Description: Looking for information, resources, and technical assistance (TA) to help you and others support children with disabilities in their least restrictive environment in school? Here’s a starter list of places to look online. These will surely lead you to more.
Description: The Individuals with Disabilities Education Act (IDEA) lists five special factors that the IEP team must consider in the development, review, and revision of each child’s IEP. The discussion below will highlight the importance of these special factors in the education of children with disabilities and the need for individualized consideration of these factors in IEP development and revision. The special factors are: Behavior, Limited English proficiency, Blindness or visual impairment,...
Description: The central “Hub” of information and products created for the network of Parent Centers serving families of children with disabilities All the materials found on the CPIR Hub have been created and archived for Parent Centers around the country to help them provide support and services to the families they serve. The CPIR employs a user-centered process, gathering the perspectives of our experienced audience—Parent Center staff members and other...
Description: VCPD members collaborate to provide diverse leadership to prepare early childhood personnel to support all children (prenatal to age five) and their families in home, school, and community settings. Our vision is for Virginia to have a high-quality, coordinated, cross-sector early childhood professional development system.
Description: VCU-ACE is a state and national leader in developing, cultivating, and disseminating knowledge to increase implementation of research-based practice needed to effectively support individuals with autism spectrum disorder to lead quality lives in their home, school, community and work. VCU-ACE improves services and supports for individuals with autism spectrum disorder (ASD) by promoting the implementation of research-based practices in schools and the community through training, technical...
Description: Toddlers have a reputation for being unreasonable. This is because they have strong feelings and are not yet able to stop their impulses. Their big emotions lead them to behave in aggressive ways: screaming, hitting, throwing things, and more. This article provides some ways to manage these tough behaviors and some things that won't help.
Description: CLASP is a national, nonpartisan, anti-poverty nonprofit advancing policy solutions for low-income people. We develop practical yet visionary strategies for reducing poverty, promoting economic opportunity, and addressing barriers faced by people of color. With over 50 years' experience at the federal, state, and local levels, we're fighting back in today's threatening political climate while advancing our vision for the future.
Description: The National Down Syndrome Congress (NDSC) is a not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, we are the leading national resource of support and information about Down syndrome, from the moment of a prenatal diagnosis through adulthood. The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families...
Description: The Waisman Center is dedicated to advancing knowledge about human development, developmental disabilities, and neurodegenerative diseases through: Research spanning the biological, behavioral and social sciences Training for students and post-doctoral fellows, providers and the community Services for individuals with developmental disabilities and their families Outreach to the community.
Description: Founded in 1990 by Don Meyer, the Sibling Support Project is a national program dedicated to the life-long and ever-changing concerns of millions of siblings of people with health, developmental, and mental health needs. Our initiatives include: Sibshops. Lively events for school-age siblings of kids with developmental and health concerns. Hundreds of Sibshops exist across the US & around the world. Find a sibshop near you Watch Video: Sibling Support Project and Introduction to Sibshops...
Description: This booklet is for the parents, caregivers or representatives of children younger than age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments. It is also for adults who became disabled in childhood (prior to age 22) and who might be entitled to Social Security Disability Insurance (SSDI) benefits. (We call this SSDI benefit a “child’s” benefit because it is paid on a parent’s Social Security earnings record.)
Description: Traumatic Brain Injury & Concussion - A traumatic brain injury, or TBI, is an injury that affects how the brain works. TBI is a major cause of death and disability in the United States. Anyone can experience a TBI, but data suggest that some groups are at greater risk for getting a TBI or having worse health outcomes after the injury. Find the following information: Mild TBI and Concussion Moderate and Severe TBI Where to Get Help TBI Facts Info for Healthcare Providers TBI Data
Description: The Safe Concussion Outcome Recovery & Education (SCORE) Program at Children’s National Hospital evaluates, monitors and manages the care of children and adolescents with concussions (known as mild traumatic brain injury or TBI). The program consults with physicians regionally and nationally, as well as scholastic and youth recreational sports programs in which children are vulnerable to injury. Clinicians in the SCORE program have a specific expertise in managing academic...
Description: Members serving in the AmeriCorps VISTA program serve full time for one-year terms. They build capacity in nonprofit organizations and public agencies to help them more effectively generate the commitment of private sector resources, encourage volunteer service at the local level, and empower individuals and communities.
Description: The Mid-Atlantic ADA Center provides information, guidance and training on the Americans with Disabilities Act (ADA), tailored to meet the needs of businesses, government entities, organizations, and individuals in the Mid-Atlantic Region (DC, DE, MD, PA, VA, and WV).
Description: For most students entering LDI, educational and employment success have been elusive. Their educational and employment difficulties have adversely affected how many view themselves and their opportunities for the future. Since 1982, LDI’s community-based and results-oriented special education programs in a residential setting have provided a supportive environment for people to grow and thrive, achieving success in obtaining competitive employment, living on their own, pursuing higher...
Description: The IAL experience includes: Build a strong foundation Through specialized academic coaching and tutoring, you’ll begin to gain skills in time management, prioritization and goal setting—building blocks that form your basic educational competence. Make the transition Once you're thinking critically and analyzing new information, we'll help you start focusing on increasing your independence and self-advocacy. Find the right balance As you become more aware, you’ll no longer...
Description: Find your Regional TTAC - There are eight T/TAC Regions across the Commonwealth of Virginia that serve professionals in their local areas.
Description: Disability Benefits - Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) programs provide assistance to people who meet our requirements for disability. The SSDI program pays benefits to you and certain family members if you are “insured.” This means that you worked long enough – and recently enough - and paid Social Security taxes on your earnings. The SSI program pays benefits to adults and children who meet our requirements for...
Description: ASD is a complex developmental disorder that affects how a person behaves, interacts with others, communicates, and learns. NICHD is one of many federal agencies and NIH Institutes working to understand ASD. NICHD supports and conducts research on what causes autism, how best to detect signs of autism, how best to treat autism and its symptoms, and other topics. General Information: About Autism What are the symptoms of autism? When do children usually show symptoms of autism? What causes...
Description: The Organization for Autism Research (OAR) was created in December 2001–the product of the shared vision and unique life experiences of OAR’s seven founders. Led by these parents and grandparents of children and adults on the autism spectrum, OAR set out to use applied science to answer questions that parents, families, individuals with autism, teachers and caregivers confront daily. No other autism organization has this singular focus.
Description: NCEO helps students with disabilities, English learners (ELs), and ELs with disabilities by: Collecting, analyzing, synthesizing, disseminating, and providing leadership on evidence-based information on inclusive assessments and comprehensive assessment systems. Promoting the use of assessments for instructional decision-making purposes. Assisting states in their efforts to support districts to improve results. Reviewing the participation and performance of students in national and state...
Description: The Digital Public Library of America amplifies the value of libraries and cultural organizations as Americans’ most trusted sources of shared knowledge. We do this by collaborating with partners to accelerate innovative tools and ideas that empower and equip libraries to make information more accessible. The Education Guide to DPLA DPLA brings the wealth of U.S. libraries, archives, and museums to your classroom. If it’s your first time using our site, this guide will help you...
Description: Decoding Dyslexia Virginia is a grassroots movement focused on linking families to resources, support, and educational interventions for dyslexia. We aim to raise dyslexia awareness, empower families to support their children and inform policy-makers on best practices to identify, remediate and support students with dyslexia in Virginia. Virginia has a universal definition of dyslexia in the state education code:...
Description: Parent Educational Advocacy Training Center (PEATC) is committed to reaching all families, schools, and communities to improve outcomes for students with disabilities. Our Mission- Building positive futures by empowering individuals with disabilities through education and training. We accomplish this by offering: Services and support for families and professionals, Easy-to-understand, research-based information and training, Opportunities for strategic partnerships and advocacy for systemic...
Description: Sports Concussion Resources - Each year, 1.6 to 3.8 million concussions result from sports/recreation injuries in the United States. Sports concussion can affect athletes of any age, gender, or type or level of sport played. While most concussions result in full recovery, some can lead to more severe injuries if not identified early and treated properly. The American Academy of Neurology is the world's largest association of neurologists, and the trusted authority...
Description: Project SEARCH is based at Cincinnati Children’s Hospital Medical Center. The administrative team oversees a large international network of Project SEARCH program sites. We maintain an active, ongoing program of technical assistance, program evaluation, program development, and continuous improvement. The Project SEARCH Transition-to-Work Program is a unique, business-led, one-year employment preparation program that takes place entirely at the workplace. Total workplace immersion...
Description: NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
Description: The Virginia School for the Deaf and the Blind provides superior education for students who are deaf/hard of hearing, blind/vision impaired, deafblind, and deaf or blind with other disabilities. Our welcoming, fully-accessible learning environment fosters self-confident students who are contributing citizens and life-long learners. At VSDB, students share equal experiences and challenges and, often for the first time, feel equal to their peers, make friends, and become leaders. At no cost...