National / State Organizations
A multitude of National Organizations exist to provide information, support and research in a wide range of disabilities and medical conditions. Explore this page for an organization in your area of interest.
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Description: Hands & Voices is dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We’re a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children. Our outreach activities, parent/professional collaboration, and advocacy efforts are focused on enabling Deaf and Hard-of-Hearing...
Description: A free public service, Virginia Relay connects people who are deaf, hard of hearing, DeafBlind or speech disabled with standard telephone users, relaying the conversation between both parties. Relay services are available 24 hours a day, 365 days a year, with no limit on the number or length of calls a user may make.
Description: The urgent mission of the Foundation Fighting Blindness, Inc. is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.
Description: Special Olympics is a movement built on inclusion, where every person is accepted and welcomed, regardless of ability or disability. We are helping make the world a better, healthier and more joyful place through the power of sport.
Description: VBPD serves as Virginia's Developmental Disabilities (DD) Council. DD Councils are in every state and territory of the United States. They work for the benefit of individuals with DD and their families to identify needs and help develop policies, programs and services that will meet these needs in a manner that respects dignity and independence.
Description: The Virginia Early Intervention Professional Development Center was created as part of Virginia’s Comprehensive System of Personnel Development (CSPD) and is maintained by the Integrated Training Collaborative and the Partnership for People with Disabilities. For more information about early intervention services in Virginia or to make a referral, call the Infant & Toddler Connection of Virginia at 1-800-234-1448. This site includes new and featured resources, tools of the trade,...
Description: The Infant & Toddler Connection of Virginia is Virginia's early intervention system for infants and toddlers (age 0-36 months) with disabilities and their families. Any infant or toddler in Virginia who isn't developing as expected or who has a medical condition that can delay typical development is eligible to receive early intervention supports and services under Part C of the Individuals with Disabilities Education Act (IDEA). Early intervention supports and services focus on...
Description: The Arc is the world’s largest community based organization of and for people with intellectual and developmental disabilities. It provides an array of services and support for families and individuals and includes over 140,000 members affiliated through more than 850 state and local chapters across the nation. There are many chapters of the ARC in Virginia.
Description: The ECTA Center supports state Part C and Section 619 programs in developing high-quality early intervention and preschool special education service systems, increasing local implementation of evidence-based practices, and enhancing outcomes for young children with disabilities and their families. We are a national technical assistance center focused on building state and local system capacity to improve outcomes for children with disabilities and their families. ECTA Center is funded by a...
Description: The National Association for the Education of Young Children (NAEYC) is a professional membership organization that works to promote high-quality early learning for all young children, birth through age 8, by connecting early childhood practice, policy, and research. We advance a diverse, dynamic early childhood profession and support all who care for, educate, and work on behalf of young children. The association comprises nearly 60,000 individual members of the early childhood community and 52...
Description: The Children’s Hemiplegia and Stroke Association (CHASA) exists to help children – children who have survived an early brain injury that results in hemiplegia or hemiparesis (weakness on one side of the body). We also help adults who have been living with a diagnosis of hemiplegia since childhood. We could tell you about all the difficulties and challenges faced by some, but not all, of our survivors – paralysis, epilepsy (seizures), issues with learning, vision, balance,...
Description: College Autism Spectrum (CAS) is an independent organization of professionals whose purpose is to assist students with autism spectrum disorders, and their families. We specialize in COLLEGE COUNSELING (helping students find the right college) and WORK/CAREER READINESS (skill building for interviews, jobs and work skills). We help students with ASD explore and navigate college options before, during and through the college process. Additionally, we provide campuses and professionals with the...
Description: Department for Aging and Rehabilitative Services (DARS) Division of Rehabilitation Services (DRS) offers vocational rehabilitation programs and services to assist people with disabilities to prepare for, secure, retain or regain employment. Our team is committed to ensuring that individuals with disabilities have opportunities to compete for and enjoy high quality employment. We collaborate with individuals with disabilities and community partners to empower individuals to maximize their...
Description: The CHKD Sports Concussion Program is the only comprehensive, multi-disciplinary sports concussion program in the region designed specifically for children, adolescents and young adults. We are a Credentialed ImPACT Consultant (CIC), employing state-of-the-art neurocognitive testing and applying the best science available in concussion management.
Description: UVA Pediatric Therapy & Rehabilitation work with children, teens and young adults who have developmental disabilities, illnesses or traumatic injuries. The specialty therapists work with your child's care team to evaluate your child's needs and develop an individual treatment plan. Pediatric Acquired & Traumatic Brain Injury Clinic - An acquired brain injury (an injury not present before birth) can dramatically affect the development of speech, language, thinking, movement and...
Description: The International Brain Injury Association (IBIA) is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury.
Description: Concussion and Traumatic Brain Injury (TBI) - The specialists in traumatic brain injury care for children who have been seen in the hospital, emergency department, physician’s office or acutely at sport event. The team includes: Brain injury specialists, educational consultants, certified athletic trainers, neuropsychologist, registered nurses, rehabilitation therapists, social workers and sports medicine physicians.
Description: Brain Injury Services (BIS) offers community-based programs and innovative programming for children, teens, and adults living in our service area with a medical diagnosis of an acquired brain injury. We have free services to support survivors of brain injury wherever they are on their journey. We provide one-on-one support and connect survivors to learn from each other. Service Area: We serve clients in Northern Virginia and the surrounding counties. The cities of Alexandria,...
Description: Preventing TBI - Key Points: Wear a seat belt every time you drive or ride in a car. Helmets lower the chance for TBI during sports and recreation activities. Take steps to prevent the chance for a fall.
Description: CDC’s HEADS UP to Youth Sports Coaches: Online Concussion Training shares the latest guidance on concussion safety and prevention.The training provides essential information to help coaches spot signs and symptoms of possible concussions and steps to take if one occurs. Heads Up to School Sports: Online Concussion Training - The National Federation of State High School Associations (NFHS) teamed up with CDC’s HEADS UP to educate high school coaches on the importance of...
Description: The HEADS UP to Schools: Online Concussion Training for School Professionals is for classroom teachers (grades K-12), school administrators, paraprofessionals, teachers' aides, and other staff who work with students.
Description: Head Start is a national child development program for children from birth to age 5, which provides services to promote academic, social and emotional development for income-eligible families. Created in 1965, Head Start is the most successful, longest-running, national school readiness program in the United States. Head Start is a child-centered, family focused, comprehensive and community-based program. Head Start provides comprehensive education, health, nutrition, dental, mental health,...
Description: ASDC is the premier source of information for people who must make decisions about deaf children: parents, families, providers, educators, legislators, and advocates. ASDC sets out the following principles, which ASDC believes apply universally to deaf children, their families, and the professionals who serve them. These principles apply regardless of whether the family chooses a cochlear implant for their child, hearing aids, other hearing technology, or no hearing technology at all....
Description: We provide educational support for individuals and families to help make sure they can manage and control their seizures to the best of their ability. Special initiatives help individuals and caregivers improve their overall health and raise awareness about the risk of sudden unexpected death in epilepsy (SUDEP). In addition, we educate the general public to help improve understanding of epilepsy, seizure recognition, and first aid. Epilepsy.com is the largest online education and community...
Description: Many interventions exist for autism spectrum disorder (ASD). Yet, scientific research has found only some of these interventions to be effective. The interventions that researchers have shown to be effective are called evidence-based practices (EBPs). One reason for using EBPs is because, by law, teaching practices must be based on evidence of effectiveness. What EBPs have been identified? The NPDC used a rigorous criteria to classify 27 focused interventions as EBPs in 2014. The 27...
Description: Depression and Bipolar Support Alliance (DBSA) - People who have mood disorders can more readily achieve wellness when they recognize the symptoms and understand the issues related to this spectrum of conditions. Written in plain English and crafted in consultation with both peers and leading clinicians, DBSA educational materials help people with diagnoses and their loved ones to know what mood disorders are, and what can be done for treatment and management. Back to School - The Mood Crew...
Description: The National Association of the Deaf (NAD) is the nation's premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America. The mission of the National Association of the Deaf is to preserve, protect and promote the civil, human and linguistic rights of deaf and hard of hearing people in the United States of America.
Description: Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000 people worldwide. It is caused by a loss of function of the UBE3A gene in the 15th chromosome derived from the mother. Angelman syndrome shares symptoms and characteristics with other disorders including autism, cerebral palsy and Prader-Willi syndrome. Due to the common characteristics, misdiagnosis occurs often. People with AS have developmental problems that become noticeable by the age...
Description: The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes. Their Core Values include: People First The Arc believes that all people with intellectual and developmental disabilities are defined by their own strengths, abilities, and inherent value — not by their disability. Equity The Arc believes that people with intellectual and...
Description: The Beach Center on Disability focuses research, training, and advocacy on promoting abilities of people of all ages who experience disability, in order to assure a self-determined, goal-driven, and self-selected quality of life within communities where everyone lives. The Beach Center on Disability, one of 15 centers within Life Span Institute (LSI) at the University of Kansas (KU), is a multidisciplinary research and training center committed to making a significant and sustainable positive...
Description: Best Buddies International is a dynamic and growing organization, thanks to the people that help advance its mission every day. From the Board of Directors to the summer interns, everyone on the Best Buddies team shares their energy and enthusiasm as they work to enhance the lives of people with intellectual and developmental disabilities. Founded in 1989 by Anthony K. Shriver, Best Buddies is a vibrant organization that has grown from one original chapter to nearly 3,000 chapters worldwide,...
Description: The Blind Children’s Center is a 501(c)(3) nonprofit organization founded in 1938 by Southern California Delta Gammas. Each year the Center serves approximately 80 children who are blind or visually impaired and provides an array of support services for more than 300 family members. Our goal is to optimize each child’s development and opportunities to lead a meaningful life through a comprehensive program beginning with early intervention, followed by an educational curriculum...
Description: Apraxia Kids supports parents and professionals in understanding and raising awareness for childhood apraxia of speech (CAS). Upon hearing the diagnosis for the first time, the amount of information can be overwhelming. WHAT IS CHILDHOOD APRAXIA OF SPEECH? Childhood apraxia of speech (CAS) is a motor speech disorder that makes it difficult for children to speak. Children with the diagnosis of apraxia of speech generally have a good understanding of language and know what they want to say....
Description: Move United’s vision is that every person, regardless of ability, has an equal opportunity to participate in sports and recreation in their community. Our mission is to provide national leadership and opportunities for individuals with disabilities to develop independence, confidence, and fitness through participation in community sports, including competition, recreation and educational programs.
Description: The Office of Head start (OHS) launched the Early Childhood Learning and Knowledge Center (ECLKC) in 2006 with a clear and innovative mission: to provide timely information and learning opportunities relevant to the Head Start and Early Head Start community, and to serve as a comprehensive resource for anyone involved in early childhood education. Head Start programs and parents visiting the ECLKC will find the latest information on OHS priorities, policies, and programs. The ECLKC also offers...
Description: The International Dyslexia Association (IDA) is a 501(c)(3) non-profit, scientific, and educational organization dedicated to the study and treatment of the learning disability, dyslexia as well as related language-based learning differences. Dyslexia is a neurological condition caused by a different wiring of the brain. There is no cure for dyslexia and individuals with this condition must learn coping strategies. Research indicates that dyslexia has no relationship to intelligence. Individuals...
Description: Since 1950, MDA has spearheaded efforts to transform the lives of people with muscular dystrophy, ALS, and related neuromuscular diseases. They fund groundbreaking research for promising treatments and provide families with the highest quality care from the best doctors in the country. Families are at the heart of MDA's mission. A caring and concerned group of families started MDA in 1950, and we continue to relentlessly pursue our promise to free families from the life-threatening effects of...
Description: NADD’s mission is to promote leadership in the expansion of knowledge, training, policy, and advocacy for mental health practices that promote a quality life for individuals with dual diagnosis (IDD/MI) in their communities. (An IDD/MI dual diagnosis refers to individuals with an intellectual/developmental disability, IDD, who concurrently experience a mental health condition. While the exact prevalence is unknown, most professionals accept that roughly 35% of people with intellectual...
Description: Ataxia is a degenerative disease of the nervous system. Many symptoms of Ataxia mimic those of being drunk, such as slurred speech, stumbling, falling, and incoordination. These symptoms are caused by damage to the cerebellum, the part of the brain that is responsible for coordinating movement. Ataxia treatment involves a combination of medication to treat symptoms and therapy to improve quality of life. People affected by Ataxia may experience problems with using their fingers and hands,...
Description: The Attention Deficit Disorder Association provides information, resources and networking opportunities to help adults with Attention Deficit Hyperactivity Disorder lead better lives.
Description: One in five people have learning and attention issues, including specific learning disabilities like dyslexia and/or attention issues like ADHD. These individuals are just as capable as their peers, but many struggle in school and beyond because they fail to get the support they need. We know that with the right support, they can thrive. NCLD works every day to make meaningful change for individuals with learning and attention issues.
Description: National Library Service (NLS) is a free braille and talking book library service for people with temporary or permanent low vision, blindness, or a physical, perceptual, or reading disability that prevents them from using regular print materials. Through a national network of cooperating libraries, NLS circulates books and magazines in braille or audio formats, that are instantly downloadable to a personal device or delivered by mail free of charge.
Description: Founded in 1909 by Clifford W. Beers, Mental Health America (MHA) is the nation’s leading community-based nonprofit dedicated to addressing the needs of those living with mental illness and promoting the overall mental health of all. MHA’s work is driven by its commitment to promote mental health as a critical part of overall wellness, including prevention services for all; early identification and intervention for those at risk; integrated care, services, and supports for those who...
Description: The National Organization on Disability (NOD) increases employment opportunities for Americans with disabilities. Our programs and services enable companies to realize the competitive advantages of hiring people with disabilities.
Description: The National Spinal Cord Injury Association is the nation's oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their families.
Description: RESNA, the Rehabilitation Engineering and Assistive Technology Society of North America, is the premier professional organization dedicated to promoting the health and well-being of people with disabilities through increasing access to technology solutions. RESNA advances the field by offering certification, continuing education, and professional development; developing assistive technology standards; promoting research and public policy; and sponsoring forums for the exchange of information and...
Description: Mission: Provide free tools to maximize all children's motor, sensory, and communication development. Vision: Empower parents to understand and encourage their baby's development to keep them on track or catch potential delays early. Goal: Ensure every child is screened for motor, sensory, and communication development by 4 months of age, taking advantage of baby's neuroplasticity.
Description: The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.
Description: Their mission is to help you grow your assistive technology (AT) knowledge, enhance your instruction and build capacity using today’s best practices and implementation strategies.
Description: CHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder) is the nation's leading non-profit organization serving individuals with ADHD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others. AN OVERVIEW GUIDE OF ADHD Everybody can have difficulty sitting still, paying attention or controlling impulsive behavior once in a while. For some people, however,...